#MultipleAutoimmuneSyndrome

The space between the posts

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life bannerIt’s been agonizingly long since I’ve posted.  Our lives have been in “crazy mode”.  Between trying to take the equity out of our completely paid for home (a more difficult task than even I imagined) and the health crisis we completed only to jump right into another…frankly, it’s time for Jesus to take the wheel on this bus ride…cause I just can’t adult anymore this month…or even this year!  But, let’s catch y’all up!  Hankies are recommended, ladies.

So, some of you who are connected with me via Spark Naturals and my Facebook happenings already know this but I’m gonna go through it all for everyone else.  I’ve been going through a massive amount of testing and doctor visits.  I was pretty sure , for a while, that my doctor was actually working for vampires in secret and just taking my blood for their nutritional benefit (har har).  No really, I’m actually shocked there’s any left!  But, he really WAS using it for labs and testing purposes.

I’ve been suffering from strange skin rashes, memory lapse, tingling in my arm (which I totally thought was a pinched nerve), headaches, fatigue, and a myriad of other odd symptoms that, to me, just didn’t add up.  From digestion to inflammation, there was too much going on for it to just be something small. Booooo! So, I went to see a doctor…who’s also a D.O. and a holistic health practitioner (I wanted someone who’d not just slap some meds on me and call it a day).

A little more than 2 weeks ago, we sat down to hot dogdiscuss my symptoms, tests, medical history, etc for a diagnosis.  I was ready for a diagnosis with a plan, and a fix…you know…a “this is what ya got…this is how ya treat it” diagnosis.  What I got was NOT what I was prepared for.  Like a train blasting through a rickety old barn and turning it to matchsticks…the diagnosis came: Multiple Autoimmune Syndrome (MAS).  All I could mutter is “What the HELL is that?”.

As I sat, pretty much in absolute shock, I listened to him spew the elephant sized diagnosis.  Multiple  Autoimmune Syndrome is when a person has 3 (or more) autoimmune diseases present.  He began with Celiac Sprue.  “Piece of cake” I thought as I sat in my chair.  I already dabble at 80% Paleo…we’ll just max it out and Celiac won’t be an issue.  Then he said Lupus Erythematosus.  He explained about diet and lifestyle changes and inflammation.  Again, I thought, “Hey, I can do it”.  And then he uttered the words that nailed the coffin shut: Multiple Sclerosis. I was flabbergasted and blown away (and not in a good way).  How in holy heck was I going to deal with this?

I get one, maybe two…but ALL THREE?!?!? No way!  And how could I go so long without knowing this…didn’t my doctors before pay attention?  We went over enzymes, antibodies, fluid tests, blood work, medical history….and at every turn, the same diagnosis and conclusion was reached.  As far as other physicians not coming to this conclusion, they didn’t have the entire history, symptoms, tests, etc to paint the whole picture.  And that wasn’t all the news he heaped upon me.

headacheMy immune system was SHOT.  He told me he was shocked that I hadn’t ended up in the ER or died with my profession (preschool teacher = germs).  He asked me how I fought germs.  He was happy when I told him diet, sleep, hand-washing and essential oils.  He told me to keep up my routine and to keep using the EOs and to increase my use of them in an attempt to bolster my system.  He also told me to add a few supplements, foods and vitamins (which I’ll list below).  He told me I needed to decrease my exposure to germs immediately (he suggested quitting my job…I laughed).  He told me we’d have to rip ALL the carpet out of our home, rip out anything in our kitchen and main living spaces that wasn’t easily cleanable (he demanded we oust the old, scary laminate for nonporous, solid surface counters like quartz…I laughed because WHO’S PAYING FOR THAT?!), and he said we need to rip all the duct work out of our home and upgrade it to solid runs with a unit that has some form of germ elimination over and above a simple filter. Again, Where’s that cash coming from?  You see our dilemma and source of stress.

So, now that we’ve closed on the loan to pull the equity out, once the money arrives, what we’d planned to do originally to fix our home and make it functional will have to sit on the back burner.  That’s devastating having lived here 5 years and scrimped and saved and planned.  Now it’s 1600+ sqft of flooring, kitchen reno, and air quality that take precedent.  Sadly, the budget still isn’t large enough to correct all those items.  My poor firefighter husband is at a loss.  He wants so badly to fix things, but we simply cannot stretch the cash that far at this time.

LoveLife_0-1024x633So, you see, our life between the posts has been fraught with valleys and potholes…and doodoo on the shoe.  But we’re still hanging on and hacking it out of the wilderness one miry day at a time.  We’ve given it up to God because, at this moment, there’s NO way to do all the things we NEED to do in order to keep me healthy.  But God is the miraculous provider…emotionally, physically, monetarily…Somehow, He’ll cover us in His grace and merciful giving and wash this away with a blessing.  We don’t know how, but we stand waiting on the Lord in faith…which, I have to tell you is the single greatest test of my faith.  I don’t wait well.  I don’t like to have to count on anyone but myself for solutions, money, help, strength.  This one is a stretch for both of us!  Prayers welcome!

To Him be all the glory and honor and praise…and may it be a pain free, energy filled week!  All my love!

As Always, I Tell you: Go at YOUR pace, comfort level, and EDUCATE yourself!  Don’t take my word for it…do your OWN research and decide what’s best for you and yours!


Love Wholly, Speak Softly, Eat Yummily, Laugh Heartily, Hug STRONGLY, and be comfortable with being YOU!

 HAPPY OILING 

XOXO

Recommended by my D.O.:

9 servings of Fruits AND Veggies a DAY (when I fall short, a greens supplement of choice to help).
Vital Proteins Collagen Peptides – protein/short chain amino acids for my skin, bones, joints, cartilage, etc
Garden of Life Mykind Organics B-12
Smarty Pants Prenatal (because it has Folate instead of Folic Acid) Vitamins
Raw Camu Powder (Navitas is what I purchased)
No Less Than 100 Ounces Water DAILY (I’m gonna float away) and NO Soda or Caffeine or Fake sugars or White Sugar